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Chiari Malformation type 1

Brain & Nervous System | Last Active: Apr 6, 2023 | Replies (146)

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@jillweinandt

Has anyone been seen for Chiari and if so, any suggestions on a good Neurologist with knowledge on this condition?
Thank you!

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Replies to "Has anyone been seen for Chiari and if so, any suggestions on a good Neurologist with..."

Hi Jill, Welcome to Connect. I moved your message to this existing discussion group in the Brain & Nervous System. Here you will meet others like @david33 @lizwhite80 @mkell13 @vbrunette @johnnie @scotthinojosa @maidmarion @david33 @nanniesue4 @ziva @luckygirl @debim who have recently talked about living with Chiari malformation. Hopefully they can share their neurologist recommendations.

Jill, I encourage you to read through the discussion thread to learn more about the experiences of others and to ask questions. While we wait for others to chime in, can you tell us a bit more about yourself? Are you currently seeing a neurologist?

Thank you so much! No, my family practitioner has been prescribing my meds. I live in a rural area in Northern Wisconsin and the two Neurologists I have seen have been of no help.

Jill, have you considered seeking a second opinion at Mayo Clinic? Here's more information about the Chiari malformation care at Mayo https://www.mayoclinic.org/diseases-conditions/chiari-malformation/care-at-mayo-clinic/mac-20354017