Anyone else diagnosed with POTS after having Covid?

Posted by ilean @ilean, Jan 21, 2023

Has anyone else been diagnosed with POTS after having Covid? Now my fasting glucose level is also high and I am having gut issues.

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In reply to @mercyreigns "Pls what is POTS?" + (show)
@mercyreigns

Pls what is POTS?

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Postural Orthostatic Tachycardia Syndrome
Symptoms related to the reduced blood volume that occurs when standing up.
This syndrome is usually triggered when a person stands up after lying down. It most commonly affects women between the ages of 15 and 50.

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Yes. I was able to eliminate mine though based on some bleeding-edge (pun intended) research from around the world. Summarized here:
https://connect.mayoclinic.org/discussion/amalgamation-of-research-self-treatment/
I had a sitting laying-down heart-rate of ~47bpm, and a sitting of 103bpm. And standing I would pass out.

Now I'm a sitting ~50 and a standing ~67.

Best,
Brandon

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@jrg200911

Postural Orthostatic Tachycardia Syndrome
Symptoms related to the reduced blood volume that occurs when standing up.
This syndrome is usually triggered when a person stands up after lying down. It most commonly affects women between the ages of 15 and 50.

Jump to this post

Hello
I am currently still dealing with canker sores from post covid.. I am on prednisone for a short term. I have experienced getting dizzy if i get up too quickly. Not sure if this is pots.. But I hope we are all healed quickly of these long haul covid syndromes..
thanks
Frannie

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I saw a cardiologist and was diagnosed with POTS after having covid. She recommended to wear compression socks and abdomen compression all day remove while sleeping. Also to increase salt intake I’m not a big fan of salt so I just sprinkled a little on my dinner and also said to sip on a bottle of Gatorade/Powerade throughout the day which I don’t like either but I tried the new Gfit from Gatorade it’s not too bad. After trying these for less than a week my POTS subsided and I no longer have to do any of these anymore. Hope this helps.

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My son has had a bad case of POTS. I´m a doctor and one of my patients has had almost total recovery with LDN.
So we tryed it, and he is alot better!
Then he also had this peculiar treatment for POTS: 2 L of water I.V. in two hours! It was a caldiologist that suggested that.
It seems he is even better after that. He has experienced being very cold most of the time, and feels this is less so, after this treatment.

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I have gone thru a battery of testing in a long haul clinic ( not Mayo) and all came out peachy keen. From this site I have learned others have experienced -sweating, hair loss, & swallowing issues. My MD’s have accepted my “expected symptoms” like dizziness, brain fog, difficulty breathing etc., but those three symptoms I mentioned were NOT. And now I read others have had syncope! What a relief. (The only testing I haven’t done is the tilt w/ cardi md. Because— why? I already know the answer: nothing we can do. ) The speech therapist I had at my clinic taught me to recognize my earliest symptoms of onset, and my worst— syncope— on a 10 Pt scale, w/ syncope a “10” and eyes blurring, brain fog worsening, hearing distort, & etc my “ 1”. He said to stop all stuff when hit a 4. Since then I’ve only had a few episodes of blacking out. However— with all the training I went thru I had not received anything PROACTIVE. I don’t even care if these work— I’m going to try your suggestions above! I got Covid 3/20, and must confess, as I have in other posts here: I never thot I’d be on a chat. But, this chat has helped SO much — just hearing others’ experiences and normalizing what I have gone thru. I was sick/quarantined from March to 2nd week in June in 2020, and was told all sorts of things. It is seriously helpful to read abt YOUR POTS experiences & other symptoms, but also hearing what has worked. It’s so encouraging. Thank you.

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For anyone with POTS after Covid, there is a clinical trial of a medication called efgartigimod (Vyvgart) currently enrolling at several medical sites in the US.

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