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@colleenyoung

@marcia115, here are some discussions related to the topics you are searching for:
- What problems have you had with Tamoxifen? https://connect.mayoclinic.org/discussion/what-problems-have-you-had-with-tamoxifen/
- My experience with proton beam therapy & breast cancer https://connect.mayoclinic.org/discussion/breast-cancer-diagnosis-in-february-2016/

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Replies to "@marcia115, here are some discussions related to the topics you are searching for: - What problems..."

colleenyoung, I never have taken Tamoxifen, my choice not to take it. I have had
close family that took it and after they were done in 5 years, she got brain cancer and
passed away. the other person got breast cancer again. what I have read on here I don't want to try it, I thought about it for many weeks and after radiation, I decided not to. I am going to
be 82 I rather have a quality of life. I am being checked every 6 months.
Proton was a very nice experience nothing but good things about it.
Thank you for the information to look up on the pill and breast cancer.

I have same osseous spread. I take Xgeva for bone strengthening and pain. It keeps most pain at bay with exception of my back.

My protocol has been. Stage4. Started with Stage 1 but aggressive type. Did 2 months of Doxy Tax. Then discovered spread to bone. Did radiation. Started Ibrance and Fossamax. Stopped working in 4 cycles. Started Xeloda. Worked for 8 months keeping spread stable. It stopped with spread in liver. Started Enhertu yesterday. Trying to be hopeful.