Breast cancer spread to liver, skull, spine, ribs, hips etc.

Hello and welcome to the new people in the group and so nice have some supporters (husbands) joining us! As a reintroduction of myself, I was diagnosed with stage IV breast cancer June 2020 at the age of 54, breast tumour, lymph nodes and Mets to femur, both hips, spine, sternum and one rib. I started on Ribociclib and Anastrozole, with XGeva injections monthly. All worked great 19 months, no evidence of disease but then it came back. Switched to Afinitor and Exemastane, had breathing issues so had to stop that, went to Xeloda, manageable side effects but after 6 months the cancer had progressed. I am now 4 treatments in to a new med not yet on the market (on a clinical Trial) that after two treatments already showed a decrease in the cancer!!! Dato-Dxd for short, but doctors ave very optimistic about this treatment for patients like us who have already tried a few other options. Side effects with any drug can be challenging, including this one I am on, I encourage all of you to take the meds they provide for relief regularly to help. The mental aspect we are all facing, there is no pill for that and I also find it hard to stay positive for family and friends etc. But - new medications are coming out regularly and each one getting better!!! Keep hope for that and do your best to live your best life every day you can!!! You are all so brave - the husbands also- to go through this journey and be strong enough to reach out to chats like this to openly share your thoughts!!! Hang in there fellow warriors!!! 😘

I had breast cancer 10 years ago, had surgery and radiation, has not come back--------now I have it in
the right breast stage 2, had surgery, and going to start proton radiation, Has anyone had proton if so
what are the side effects? also after reading a lot of everyone's comments I don't see where anyone is on
Tamoxifen. I am to take it after the radiation. I have decided not to take it after reading about it. I am 81.
going to do nothing, just like what I did 10 years ago.

@marcia115, here are some discussions related to the topics you are searching for:
- What problems have you had with Tamoxifen? https://connect.mayoclinic.org/discussion/what-problems-have-you-had-with-tamoxifen/
- My experience with proton beam therapy & breast cancer https://connect.mayoclinic.org/discussion/breast-cancer-diagnosis-in-february-2016/

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1. Go to the All Discussions page: https://connect.mayoclinic.org/discussions/all/
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Hi @kimlockwood, I believe you are looking to connect with members whose metastatic breast cancer continues to spread. Here is where you were connecting with other MBC-ers like @susane1121 @catlady7 @cynthia09 @mglinkhart @lisakinpa @jbp @sam2020

- Breast cancer spread to liver, skull, spine, ribs, hips etc. https://connect.mayoclinic.org/discussion/moms-breast-cancer-spread-to-liver-skull-spine-ribs-hips-etc/

Kim, it sounds like you've recently learned that the cancer has spread to your ribs. That is hard news to learn it found a new place to install itself. How was this discovered? Do you have pain? How are you doing emotionally with this news?

Hey, @kimlockwood.... is there bone swelling associated with the cancer spreading to your rib? (I haven't had pain, but one of my ribs is distinctly bigger now than it used to be. I'm aware of this because of my doing manual lymph drainage for lymphedema over the last nine months.)

I had breast cancer 10 years ago, had surgery and radiation, has not come back--------now I have it in
the right breast stage 2, had surgery, and going to start proton radiation, Has anyone had proton if so
what are the side effects? also after reading a lot of everyone's comments I don't see where anyone is on
Tamoxifen. I am to take it after the radiation. I have decided not to take it after reading about it. I am 81.
going to do nothing, just like what I did 10 years ago.