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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Nov 3, 2023 | Replies (247)

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@msmerry

Hello to everyone and Happy New Year to you all. I am currently in an outbreak which is showing signs I have never had before and now into my 3rd year. I have one on my ankle where the others were but this time my foot is swelling so badly my toes do not touch the floor and my arch is swollen and the skin forming large blister like areas...I say blister-like because they look like a blister but do not act as one. There is no fluid in the pocket. It just forms a hardened area that is 'punchy' to the touch.
They start to peel off as well as me peeling them. I have never seen this happen before and the pain is relentless with raw skin. There is also swollen pockets just below the ulcer area...I guess under the ankle. The pain feels like it is coming from the large ulcer. (which is trying so hard to heal and I can say it is not nearly as deep which is hopeful)

Any Drs I have seen have never seen anything like this, including my GP. All that is being done is pain meds and Trental 3 times a day. Just an added note, I am in Canada and we are restricted to a lot of meds. There was one Dr. who indicated that it may be autoimmune related but that was as far as things went. ( He was a visiting Dr. to our small hosp.)
So, today I am reaching out to see if anyone else has had anything similar happen in a break out with the arch of their foot. Or anything new that they have found to help get thru this. I'm sorry but in my 3rd year I am starting to get really frustrated. Tears come easy with the pain now...in part due to being so frustrated with the length of time I think and no solutions.
Thanks in advance for any help or ideas anyone might have. Huge LV (((Hugs))) coming your way.

MsMerry

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Replies to "Hello to everyone and Happy New Year to you all. I am currently in an outbreak..."

Hi Ms. Merry, Have you been able to try blood thinner medication ,like Xarelto? I assume your doc has checked to see if you have venous insufficiency in your swollen foot ,like an ultrasound test to see if you have blockages in that leg. You can have skin changes in your foot if the blood is not getting to the dermis . A dermatologist would recognize it but a vascular surgeon would know for sure. Please let us know what you find out. Your friend, Zenk