Hello @mkell13, welcome to Connect. I moved your discussion post in to a long existing conversation on Chairi malformation so that all of the members who have discussed this diagnosis in the past would get a notification. If you are responding by email, I encourage you to click on the VIEW & REPLY button at the bottom of the email so that you will be taken to the long discussion. Once there, you will meet other members who have had similar experiences and diagnoses as you.

@mkell13, what have your neurologists told you about the migraine pain? Have they talked about why they don't think it is from the malformation?

I now have ringing in my ears, dizziness, and i even passed out twice. I have facial drooping so bad i cant see out of my left eye while my right eye vision is blurry. When i go to the ER they immediately start me on stroke protocol . I have numbness in my right foot. Nausea/vomiting. My pain is so tense it is a severe pressure in my head. My blood pressure gets very high at 210/147. I constantly have my head hurt 24/7. Im told t
My bp is high from the pain. Ive had 3 neurologist tell me i have a chairi and it went from 2-3 mm to 3-4 mm since 3 years ago. My problem is i just saw another neurologist and she says its all from migraines. I went telling myself i will do whatever even surgery but i feel im going backwards from 3 years ago since now its just migraines again. I was put on medical leave due to not being able to do my job as a nurse. I just want my life back and i am so confused whether i should try yet another dr. I feel so defeated.

Also, i have tried botox and lots of meds such as depakote, indomethicin, nausea meds. They will put me in the hospital to stop the pain. Im tired of just masking the symptoms with no relief. I get sharp shooting pain that starts in my neck/ back of my head. My upper mid back has pain it. If i sit up too long or sneeze hard is when the pain will start. Now the new dr wants to put me on opioids or send me to a pain clinic. Does anyone else have these symptoms or is it really just migraines?

Hi @mekell13, I know this post is from March, but i was wondering what you ended up doing?

I had a hard time getting it diagnosed in my area so i now had a dr in Chicago that is about 6 hours from me that specialized in chairi malformation and said it is a chairi and is at my c2-c3. They are now ordering more MRI's of my lumbar sacrial and thoraic areas. My symptons have got worse where i fall and do get hurt so im hoping it is done soon. Thank you for inquiring.

With an MRI scan.

You need to have am MRI scan of the back of your head. Hasn't anyone suggested that you have this done?. This is the only way to confirm that it is,or it is not Chiari Malformation. Speak to,your doctor and shout if you have to. The sooner Chiari is treated with decompression the better the outcome for you.