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Chiari Malformation type 1

Brain & Nervous System | Last Active: Apr 6, 2023 | Replies (146)

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@maidmarion

I wanted to let everyone with the diagnosis of Chiari to consider having the surgery but make sure your neurosurgeon performs a lot of them. I had an excellent surgeon and he performed surgery on me and I am a almost 60 years old. My headaches are not nearly as bad as pre-surgery. My surgery was two weeks ago. I would like to know if there is anyone out there that has had the surgery and can tell me if their headaches subsided and if the back of your head will ever feel normal. Thanks, Marion

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Replies to "I wanted to let everyone with the diagnosis of Chiari to consider having the surgery but..."

Welcome @maidmarion.
I'm glad that you were able to post a message.
Two weeks is not a very long time post surgery. I suspect you will experience more healing yet, but I've never had this procedure done. @david33 recently went through the surgery and may have more to add. I'm tagging @alicein_wonderland on this message to bring her into the discussion as well.

Thank you Colleen. I am glad I found a place where I can talk to others and know that I am not alone. <br />
Marion<br />
<br />

I'm having surgery on Sept 4th and I'm scared to death! I've concealed 2 times but the nerve pain is so bad I'll try anything! Did you have her e pain before surgery? If so is it better now? And how does the back of yr head feel after surgery!?