Post COVID Brain Fog: The Consistent Mystery

Aug 1, 2022 | Greg Vanichkachorn | @drvan | Comments (47)

In the early days of the pandemic, patients with Post COVID Syndrome (PCS) reported troubles with their thinking. This came to be known as brain fog, and since then the term has become of permanent part of the PCS discussion. Yet, if you look up the word brain fog in a medical dictionary, you won’t find any information. That’s because brain fog is not a medical term and it does not have a set definition. However, if we go past the term brain fog and ask patients with PCS what specific thinking problems they have, patients describe amazingly similar troubles.

The most common complaint is trouble finding words during speech. Patients often describe feeling the word they want to say is on the tip of their tongue, but they just can’t proceed.  This makes communicating very difficult, which is quite frustrating, especially when suffering a medical condition.

The next frequent problem involves short term memory. The classic story we hear from patients is that they will go into a room to find something, and not remember what they were looking for when they get there.  Or they will listen to new information, such as driving directions, and not be able to retain the details.

Finally, patients have problems with multitasking.  Doing even simple things at the same time are much harder with PCS. A common example is having troubles grocery shopping while having a conversation.

This pattern of thinking difficulty PCS is surprisingly consistent. It is also not rare. In fact, 45% of our patients in the COVID Activity Rehabilitation Program (CARP) report suffering from brain fog.  And unfortunately, of all the symptoms we get to help patients with, thinking troubles are often one of the most stressful symptoms, because it causes problems with work and relationships.

Fortunately, we are now starting to unravel the mystery around brain fog.  For example, there are now studies showing that after COVID, there can be brain structure changes, explaining the dysfunction we see.  We are also making progress in how brain fog is objectively described. For example, a research study at Mayo Clinic is currently trialing a new virtual test for brain fog. This 25-minute test allows our team to identify specific areas of troubled thinking in patients with PCS. This is important because once we know the problems, we can help patients develop specific strategies to overcome their troubles. And with each test, we are contributing to a growing database that helps describe brain fog in PCS more accurately.

What should you do if you feel you have troubles with thinking after a COVID infection? First, take care of yourself.  Eat well, hydrate, and get good sleep.  If that doesn’t help, reach out to your treatment provider. We have found that patients that are able to get help sooner, get better faster and more completely.

Together, we can help clear out the brain fog of PCS, and shed more light on the path to better health.

Read more about managing symptoms through early care. Learn tips on talking with your health care provider about post COVID syndrome, and connect with other people in the Post-COVID Recovery & COVID-19 support group.

Interested in more newsfeed posts like this? Go to the Post-COVID Recovery blog.

@colleenyoung

Shan, what follow-up protocol has been suggested to monitor your lungs? Have the other long-covid effects improved over time for you?

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I had a repeat CT of my lungs and the ground-glass opacities had resolved. I continue to have migraines, brain fog, tinnitus, intermittent anxiety and altered smell.

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I understand that online medical prescriptions should be the last thing one should follow up on but with nothing coming from the medical community - it gets very enticing.

What confuses me is the lack of testing or investigative efforts. I know that we are fighting a hard to find or evasive virus that all say it dies in 11 days - no 10 or now 5 days so we can get back to work earlier. Yes, we have a photo of it (Orange ball with spikes) but can't find it. We speculate it's in our lungs, gut, heart, brains, blood vessels, brain and nervous system but heaven help us if we do scans or run test to verify it or take blood samples to check for indicators. Why not track it down as we do cancer and start a systematic treatment for the symptoms if we are too scared to try a cure.
I know as one of the old folks (74) you young whippersnappers could care less about us losing a year or two of your life span - but if medical industry doesn't address it head on our two years could become ten on your end. Our government has abandoned testing and apparently cures and instead would like to keep it hidden as was the case with abortions and aids - how did that work out

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@andipandi1223

My husband had a very successful company and went to MIT in his younger years. He is 71 years old now and had Covid in 2020. He was hospitalized for dehydration twice and has had problems since from muscle, eyesight, brain fog and verbal communication (finding the correct words). In the last 3 months, since he started taking MCT oils, walking and eating healthy, miraculous things are happening. He is playing golf and shooting pool again and has a very positive outlook. Hope this is helpful.

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Great story! How much MCT oil does he take?

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@bennu007

I had COVID in March of 2020. I am a first responder and returned to work after about 6 weeks. Unfortunately Long COVID was not even a thought. My PCP told me that my issues were a residual of the infection and they would go away. I say that to not place blame but my symptoms became much worse than I believe would have if I contracted COVID now and dealt with the symptoms right away. I didn’t recognize the brain fog until much later after my initial infection causing a much longer recovery. My point is to seek help right away. Don’t doubt yourself or minimize your symptoms. The earlier intervention the better overall. Brain fog caused me severe anxiety which doesn’t help the recovery time at all. I’m grateful for my Neurologist and his LONG COVID team at Henry Ford who are taking a genuine interest in this virus. The acknowledgement that I wasn’t crazy and was going through these brain changes lifted a huge burden off me that allowed me to heal.

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Thank you for your comment. I have been experiencing brain fog, headaches, coughing, and shortness of breath ever since I had COVID in September of 2022. I never even heard of long term COVID until my friend, a nurse, told me she thought I may have this. It's almost a relief that I have a cause, now how do I get rid of it?

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@cul8tr

Thank you for your comment. I have been experiencing brain fog, headaches, coughing, and shortness of breath ever since I had COVID in September of 2022. I never even heard of long term COVID until my friend, a nurse, told me she thought I may have this. It's almost a relief that I have a cause, now how do I get rid of it?

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Hi Cult8r. I would suggest bringing your concerns to your PCP. They would need to rule out any other issues before treating you for long covid. I definitely wouldn’t put a doctor visit off. The sooner the better in my opinion. Best wishes to you.

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At 15 months post COVID I went through 10 consecutive sessions of hyperbaric oxygen treatment and that was the turning point in my brain fog. Even within the first few treatments I began to see improvement, and it was amazing the before and after results. I could find words and I could speak those words! My brain fog continued to clear up each day. I’m now at 27 months post COVID and I’m close to pre-covid brain.

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@tference

What treatment did you get for the brain fog

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After getting covid, I forgot things easily and could not focus, I went to the bathroom 3 to 4 times per night, I felt extremely tired even after a long night sleep. Doctors checked me up and could not find the reason. But after some months of getting enough oxygen level, I feel energized in the morning, my memory is getting better by 90% -95%, I am still trying to reach to 100% level. I now can work long hours without feeling tired. This is all that I have been doing: walking at least 6000 steps every morning, often practicing 4-7-8 breathing technique during day time (I read about this technique from CNN), use Medcline pillow (you can use an alternate brand, as long as it is elevated, it is good for you), humidifier for my bedroom, light salt water (after brushing teeth), neck/muscle stretching and I wear Oxygen ring monitor overnight. When you wear an oxygen ring monitor, you will know what position of sleeping can help to get the best oxygen level. To my knowledge, lacking oxygen makes our brain foggy, tired, all of our organs are affected dramatically since blood cannot be delivered to all parts of our body. A year ago, I myself thought I got Alhzeimer at an early age but now I am back to normal so I hope my info helps you too. Daily 4/7/8 Mindfulness breathing before bedtime truly helps. Good luck to you all!!!

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I forgot to mention, besides breathing, drinking enough water helps too 🙂

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Check out the book Clearing the Fog by Dr.Jackson. It’s an easy read (I got it on Audible because my head shakes and I can’t read) but it was an easy listen:). Very good info.

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I get so frustrated with the Long Covid recovery groups when they prescribe neuro psych exams well in to your illness. In my case, I was nearly 10 months into long covid when I had mine. I asked what they were expecting to find as they had no baseline data prior to covid infection and any findings would be post infection without a comparison so it could not tell or indicate a loss of function. So when I took mine, they found I was average to above average and to explain away my assertion that I had memory, brain function problems - they asserted that I was arrogant or verbose in my belief I was smarted or my brain functioned better the weeks before Covid. I never had much respect for psychologists before covid - I have absolutely none now. The lack of common sense, competence in the treatment for long covid gives me pause as either they have no clue or they do and don't want the patients to have one ( a clue).
It seems so simple - there should be a standard set of blood test at 1 month, 6 months and yearly after that as long as you have symptoms. Additionally, you should have appropriate scans at 6 months then yearly until symptoms end unless the organs being scanned show damage. We know Covid can damage the lungs, heart, brain, nerves, intestines, pancreas, ..... They owe it to us as this desease is part of the rush to a cure and eventually 1 in 4 will be affected by it - up to and including death.

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