Replies to All I keep getting told is “your brain isn’t falling out enough to worry about it”….

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Brain & Nervous System | Last Active: Apr 6, 2023 | Replies (146)

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@donnak69

All I keep getting told is "your brain isn't falling out enough to worry about it". I now have seizures I can't work, I can't drive and I have many other problems and I am only 46

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Replies to "All I keep getting told is "your brain isn't falling out enough to worry about it"...."

Cynaburst, Alumna Mentor | @cynaburst | Oct 2, 2015

So sorry to hear that you have been struggling. Have you been able to locate a doctor who specializes in Chiari Malformation? I know that there are some around the country, though you may have to do some digging and travel to find one. I have found that a specialist makes all the difference.

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resawaller | @resawaller | Aug 27, 2019

Have you had the Chiari surgery? And do you have nerve damage?

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