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Chiari Malformation type 1

Brain & Nervous System | Last Active: Apr 6, 2023 | Replies (146)

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@sweetthing111059

I had chiari surgery back in 2005. But for some reason I started looking spinal fluid and to go back in and ride something. The only problems I have is real bad headaches at the base of the skull where the Chiari is. I just think I use the wrong doctor because when I tried to tell him what was happening he wanted to send me to a nut doctor thinking its all in my head. I know I have the pain in nor crazy. But think god my pain management dr isrunning all kind of test to find out just what is going on he is determined to find my problems. Make sure u find a doctor willing to sit down and talk to you.any thing I can help with please let me know I know how painful. They are.

Deb

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Replies to "I had chiari surgery back in 2005. But for some reason I started looking spinal fluid..."

My neurologist just keeps saying it's Chiari and wants to do surgery! I've concealed 3 times cause my gut feeling tells no! I can deal with the headaches, and neck pain, it's the nerve pain that s killing me every hour of my life! I don't want to wake up anymore,and I don't know what to do! If anyone put there can help me !! I need to know if you had surgery for Chiari surgery, did the nerve pain go away! I don't want a whole in my head for nothing! Please God someone give me a answer!