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Chiari Malformation type 1

Brain & Nervous System | Last Active: Apr 6, 2023 | Replies (146)

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@spoiledheather

Has anyone on here had surgery for chiari malformation??

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Replies to "Has anyone on here had surgery for chiari malformation??"

I had chiari surgery back in 2005. But for some reason I started looking spinal fluid and to go back in and ride something. The only problems I have is real bad headaches at the base of the skull where the Chiari is. I just think I use the wrong doctor because when I tried to tell him what was happening he wanted to send me to a nut doctor thinking its all in my head. I know I have the pain in nor crazy. But think god my pain management dr isrunning all kind of test to find out just what is going on he is determined to find my problems. Make sure u find a doctor willing to sit down and talk to you.any thing I can help with please let me know I know how painful. They are.

Deb

Yes I had decompression surgery 12 years ago. I lead a very normal life and the only problem I have is with my back. I have damaged nerves in my back and I take pregablin twice a day.

Yes I have but I'm afraid my outcome was not that good so I will spare u the details, just fine everything there is to know about it knolage is everything !

I'm having the surgery on Wednesday and I'm scared to death! Your not alone God is with us!

I have what do you want to know ?

yes had surgery in 1999