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Chiari Malformation type 1

Brain & Nervous System | Last Active: Apr 6, 2023 | Replies (146)

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@anorwalk

Thank you trouse. I have been to one Nero surgeon and three neurologist in the past year. The worst was that I found out my dx by reading my MRI report not by my dr. So I got sick of him and found a dr who has dealt with it before. When I saw the surgeon he said I didn't need the surgery, but when I saw my new dr he said that I needed surgery ASAP other wise I was a sneeze away from being paralyzed. So now I'm going to the mayo clinic in AZ. He put me on a bunch of meds and I still get no relief. I have been dealing with severe headaches everyday for over a year. How long did it take you before someone believed you about your pain and symptoms? I'm really glad that your doing so great. Here in AZ there are not a lot of specialist. I guess we will see what mayo has to say.

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Replies to "Thank you trouse. I have been to one Nero surgeon and three neurologist in the past..."

I thought about the mayo clinic but its too far away from me ! Im have surgery on Sept 4th please pray for me ! I'll let everyone know how it goes if I wake up! It's in God's hands

I have 2 doctors telling me to have Chiari surgery , but I believe it's my syringomyelia that's causeing my nerve damage! But he says that will be fixed after he does the Chiari surgery! What do you think!? Please help my surgery is on Sept 4th and my husband is against the surgery, what so u do?