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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: May 18 6:58pm | Replies (554)
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@ncc2023

@ncc2023
Started with sharp pains in my feet in 1997. Sent to Kentucky Hosp in Louisville checking for MS.
No MS diagnosis but told I have fibromyalgia. No drugs were helpful and just suffered until 2002 and put on Gabapentin. No symptoms but brain fog.
I also have Tinnitus since 1996 (a high pitch ringing) and now have balance problems falling a lot.
Trying to find out if the two are related and if it's true that Tinnitus causes brain cells to die.
When walking I tend to occasionally drag my right foot which causes me to fall. I have taken PT for balance to no avail. Any suggestions?

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Replies to "@NCC2023 Started with sharp pains in my feet in 1997. Sent to Kentucky Hosp in Louisville..."
John, Volunteer Mentor | @johnbishop | Feb 9, 2023

Hello @ncc2023, Welcome to Connect. It sounds like you have been dealing with pain a long time. I know that has to be difficult to manage from day to day. There are a couple of discussions you might find helpful since you mentioned you have Fibromyalgia and Tinnitis.

-- Have you found anything to successfully treat fibromyalgia pain?: https://connect.mayoclinic.org/discussion/dealing-with-fibromyalgia-pain/
-- Want to talk to others with fibromyalgia: What symptoms do you have?: https://connect.mayoclinic.org/discussion/firomyalgia/
-- Controlling Tinnitus: What works for you?: https://connect.mayoclinic.org/discussion/tinnitus-control/.
-- Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/.

You mentioned you occasionally drag your right foot when walking. Have you ever had your gait checked?

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ncc2023 | @ncc2023 | Feb 10, 2023

I fell while walking my small dog on Dec 1 2022. Had wrist surgery with a
plate and screws to correct. I am now terrified to walk outside! Do you
get depressed often?

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NJ Ed | @njed | Feb 14, 2023

ncc2023 - you mentioned in your post that you tend to drag your foot - is the front of your foot "catching" and you trip forward? I had this also prior to developing drop foot. The front of the foot not clearing in a normal walk can cause a trip, the top of my sneaker had a scuff mark.

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