Myopathy?

I am sorry for all you endure. Myopathy. Its a nasty and painful thing. To have prolonged myopathy I could not imagine. I suppose my reuhmy will check my ck levels. See if it registers. Prednisone. It eases the pains but sends the pulse rate up there and that is sustained elevations (about 115-124) for a day or two. Made my blood sugar numbers go up. My pulmonologist said this is a medication we cant use because of that.

I mentioned the thyroid issue I’m now having (the nodules and cyst). In the past when I was in my early 30’s and I had suppressed TSH with normal t3 and t4. palpitations, temperature would come and go, thin. The doctor thought it was a mild case of intermittent graves. I was not on a blood pressure med back then. He put me on a medication for 6 months, I think it was Tapazole. I think that might be an autoimmune condition. Since then, I gained, and. The situation seemed to resolve. I’m going to ask the endocrinologist about the thyroid and give her my history, however brief that was. Way back then i was told I had sjogrens. My Ana has been positive 5 times that I know of. Low tigers, speckled pattern 3x reflexive test was negative. Low IgM. With a strange history, not exactly sure if this ties into anything present. We she see. I think time will tell. Thank you for your help!!!!

Sorry, I missed your previous question. General anesthesia can cause many things. Muscle aches and pains after general anesthesia is a well known problem but it is usually temporary.
https://www.verywellhealth.com/general-anesthesia-side-effects-and-complications-4141168#:~:text=Anesthesia%20temporarily%20paralyzes%20your%20body,movements%20getting%20in%20the%20way.
Does your doctor think you have psoriatic arthritis or myopathy?

Even though psoriatic arthritis suggests a problem associated more with bones and joints it can also cause muscle pain just like PMR does.

Psoriatic arthritis and PMR are different but the symptoms are very similar. My guess is that there are many cases of psoriatic arthritis that are misdiagnosed as PMR and vice versa. PMR and psoriatic arthritis are difficult to differentiate even for experienced rheumatologists.

Embrel is often used to treat psoriatic arthritis but usually not recommended for PMR.
https://www.psoriasis.org/enbrel/
I hope this helps. Rheumatologists are smart people so you have to trust what they say. A wise rheumatologist will reevaluate over time as new information becomes available.

I have both. The myopathy happened the day after my surgery/general anesthesia (first time). The myopathy didn’t stop until day 6-7. I am left with the PA and Neuropathy and spasms etc. The rheumatologist diagnosed the PA last year. An anesthesiologist doctor said I had myopathy. He didn’t think the muscle stuff was due to anesthesia. He thought it was something else but would not elaborate. He said he would reassess after another 48-72 hours. I never called him back because it improved. I only remember myopathy “like” pains when I was in my early 30’s. Back then I was told I had fibromyalgia and sjogrens and djd. I guess this evolved or just became something else??? that was another rheumy back in 1999 and 2000. After my Bell’s palsy and facial weakness etc… I digress. Thank you so much for your wealth of information. Especially about the Enbrel. Guess I dodged a bullet. I have arthritis in knee and recent exray showed mild disease. I don’t know what “mild disease” they were referring to. Its just a mental note for me. I know I pulled my right shoulder but that dr said an mri would mean surgery, he wanted to exhaust the physical therapy route first. These days I pay most attention to what bothers me rather than this and that or I would go a little wackadoo with the different problems. I’m still relatively young (if even just in my mind). I guess you could say my finally getting to doctors after a long time brings up stuff that I need to follow up on. So thats what I’m doing. I will bring up to this rheumy the myopathy and see what she says and does. Thank you again for all of your help @dadcue.

Ps: a disturbing (although it all was) part of the myopathy was the weakness I had with the muscles that help you cough and do a sit up. I could not cough deeply. Only a chug with pain….Or get up from a seated position or have the strength to remove s weather. I needed assistance…..

PA was found in sacrum/MRI. Lesioin and edema in marrow. Etc.

Dry eyes and a dry mouth are the most common symptoms of Sjogren's syndrome.
https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/symptoms-causes/syc-20353216#:~:text=Sjogren's%20(SHOW%2Dgrins)%20syndrome,as%20rheumatoid%20arthritis%20and%20lupus.
Psoriatic arthritis is commonly associated with psoriasis but not always. All these autoimmune conditions are named according to the symptom that predominates but that doesn't exclude other autoimmune disorders. When you have many symptoms it becomes difficult to make a diagnosis with any degree of certainty.

PMR (polymyalgia rheumatica) just means "many muscles have pain" but that isn't very precise. Muscle pain and stiffness is caused by many things. PMR is thought to be a vasculitis which is actually inflammation in blood vessels. Nobody seems to know what PMR actually is except that vasculitis is the most likely cause.

I do think autoimmune conditions evolve and change over time. I never could pin my rheumatologist down on any one diagnosis. She would says things like "systemic inflammation" and "a full range of rheumatic disorders."

I was diagnosed with two things in my early 30's:
1) reactive arthritis = reaction to an infection
2) uveitis = eye inflammation associated with reactive arthritis and other types of spondylitis.
Both of these conditions were "prednisone responsive" but aren't usually treated with long term prednisone.

PMR was diagnosed when I was 52 years old. The symptoms were about the same as reactive arthritis except the pain was more widespread and I couldn't lift my arms. Prednisone worked for PMR too except that I couldn't taper off prednisone quickly like I could with reactive arthritis and uveitis flares.

Sometimes I think prednisone caused adrenal insufficiency so that I couldn't get off prednisone easily. My rheumatologist didn't know what caused PMR except that it was unfortunate to have PMR in addition to reactive arthritis/uveitis.

When you have one autoimmune disorder you are likely to have others.