1. < Neuropathy
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Stimwave user here: What's been your experience?

Posted by donw @donw200, Aug 20, 2019

Like most of us, I did not want a battery implant so I went with Stimwave scs. Its been permanently placed on my spine about 10 days ago. I do feel a little less pain, but my right foot nerve pain still prevents me from sleeping normal hours, preparing home meals and doing normal tasks. I am disappointed. I was hoping for more relief. My worst pain bursts went from 10 to 9. Plus, I still need pain pills.

Interested in more discussions like this? Go to the Neuropathy Support Group.

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johnmacc | @johnmacc | Feb 9, 2023
In reply to @lorirenee1 "Hi Lisa, Thanks for the Kratom info. I have read piles of information about it, and..." + (show)
Profile picture for lorirenee1 @lorirenee1

Hi Lisa, Thanks for the Kratom info. I have read piles of information about it, and I am very careful. I think it works better than many things, so it is good for me. I also think CBD oil and salve is very helpful. I did Scrambler therapy, and it worked very well, but only for about three weeks. I tried it again, and it worked for about two weeks. Physical therapy did nothing. Acupuncture did nothing. Gabapentin and Duloxetine do little. Lidocaine patches, prescription strength, help at times, and then not. I bought a three hundred dollar compounding cream, which did nothing. Frankincense and Myrr, for Neuropathy, bought on amazon, does help. Water spa is soothing. Just ordered foot massager from Amazon. Waiting for it. This illness is ungodly. LoriRenee

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Dear LoriRenee. I echo the words of caution about Kratom use as it can do more harm than good for people. All the evidence you need is easily accessible by googling Mayo clinic and Kratom. Be well, Johnmacc

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bunnybear | @bunnybear | Feb 25, 2023
In reply to @medman18 "Has anyone tried a " Tens unit" for pain management? It stops the pain message from..." + (show)
Profile picture for medman18 @medman18

Has anyone tried a " Tens unit" for pain management? It stops the pain message from going to your brain. It costs under $100 on Amazon. It has been used for years in Physical Therapy and pain management.
Jack

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Yes, I used a TENS unit a few years ago. I got it through Medicare and/or BCBS, my secondary, at no cost. It helped a small amount. But when you are desperate you will put up with a lot of downsides. The downsides are in getting it put on and weak relief. Ultimately, I quit and just relied on medicines. But recently I did the spinal cord stimulator trial which really helped a lot. I am currently awaiting permanent placement and I’m really excited about it! Gayle

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medman18 | @medman18 | Feb 25, 2023

Gayle, I am so glad to hear that the spinal cord stimulator is helping you and you are going to get a permanent placement. Way to go , girl.
Jack

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mikeythecat | @mikeythecat | Feb 25, 2023

I took about 8 weeks (2x/wk) electro-stim treatments from my podiatrist on my feet. He put pads on my feet and legs and turned on the juice for about 30 minutes. He also put infra-red pads on them.

I thought it was helping until I had to leave town for our yearly trip.in our motorhome. My neuropathy still flares up at night. Feels good when walking...but at night it burns and itches. I use 2-300.mg Gabapentin, a couple puffs of marijuana, and lie still listening to a podcast to fall asleep. It may not cancel the pain, but it takes your mind off it so you can sleep.

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martyk | @martyk | Feb 26, 2023
In reply to @bunnybear "Yes, I used a TENS unit a few years ago. I got it through Medicare and/or..." + (show)
Profile picture for bunnybear @bunnybear

Yes, I used a TENS unit a few years ago. I got it through Medicare and/or BCBS, my secondary, at no cost. It helped a small amount. But when you are desperate you will put up with a lot of downsides. The downsides are in getting it put on and weak relief. Ultimately, I quit and just relied on medicines. But recently I did the spinal cord stimulator trial which really helped a lot. I am currently awaiting permanent placement and I’m really excited about it! Gayle

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Hi Gayle, which SCS (spinal cord stimulator) did you try? Boston Scientific, Abbott or Nevro? I'm happy that got relief with the trial. Let's hope the permanent one gives you the same amount or better pain relief. Marty

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bunnybear | @bunnybear | Feb 26, 2023

Thanks Marty! I got the Nevro. Gayle

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medman18 | @medman18 | Feb 26, 2023
In reply to @mikeythecat "I took about 8 weeks (2x/wk) electro-stim treatments from my podiatrist on my feet. He put..." + (show)
Profile picture for mikeythecat @mikeythecat

I took about 8 weeks (2x/wk) electro-stim treatments from my podiatrist on my feet. He put pads on my feet and legs and turned on the juice for about 30 minutes. He also put infra-red pads on them.

I thought it was helping until I had to leave town for our yearly trip.in our motorhome. My neuropathy still flares up at night. Feels good when walking...but at night it burns and itches. I use 2-300.mg Gabapentin, a couple puffs of marijuana, and lie still listening to a podcast to fall asleep. It may not cancel the pain, but it takes your mind off it so you can sleep.

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Hi I was wondering did you get a script for the marijuana and then where did you purchase it?
I was thinking that a few puffs at night before bedtime could help me too.
Thanks
Jack

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mikeythecat | @mikeythecat | Feb 26, 2023
In reply to @medman18 "Hi I was wondering did you get a script for the marijuana and then where did..." + (show)
Profile picture for medman18 @medman18

Hi I was wondering did you get a script for the marijuana and then where did you purchase it?
I was thinking that a few puffs at night before bedtime could help me too.
Thanks
Jack

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We're from Montana where it is legal. I don't use medical marijuana. We make a trip to Washington every once in a while where it is cheaper. You need to pick a legal state and make a trip. We're in a motorhome presently in Texas heading east. We topped off our supply in Arizona before we left for "the South" if ya know what I mean!

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medman18 | @medman18 | Feb 26, 2023

I will wait until I get back to New Jersey in the spring and purchase it there, it is legal.
Thanks and good luck,
Jack

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