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Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (401)Comment receiving replies
The situation in Spain, where I live, is rather different than in US.It looks as if everything is only geared towards treatment and no really support. We have a systema National de Salud, where there is no dialogue and only one treatment - take it or leave it and a private system with less waiting time to get a consultation and it is rather expensive. The private system give you only a little more freedom to choose the treatment, but still the only look at the medical side and not what other kind of treatments you do, inclusive diet.
I lack a system where your case is taken up in pleno, but that is probably not possible due to that most patients have very little knowledge about there body and how to maintain it.
Ole
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@lasfarolas I daresay that during the pandemic of Covid, many patients have become isolated, and can probably relate to the picture you have painted, of little support.
This is where being our own advocates for our personal health and education becomes so important. And for those of us in rural settings, or with severely compromised immune systems, we need to continue to isolate and protect ourselves. To me, this is where the value of Mayo Clinic Connect comes in, sharing our stories and experiences virtually with others! It certainly makes me feel less alone.
Ginger