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Caring for your caregiver when you have Neuropathy

Neuropathy | Last Active: Feb 10, 2023 | Replies (15)

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@nemo1

We look at each other when he speaks so I can in some cases read his lips a little and watch the word he try’s to say. It helps. Mask wearing makes it difficult. I’m preparing for the time he will have to write out his responses on a white board. We do things together. I really don’t think we are very prepared for when and if he loses it. I try to have him relax after work. He walks 5 miles a day. It helps him. It takes a lot of patience. Physical Therapy. Sometimes there is frustration, that turns to a sadness. I try to turn it around. But there is grieving of a sort for this kind of loss. I’m still learning. My therapist helps. I practice square breathing to help relax and it sort of gives me a time out. Lol We still have to work at finding strategies that work. Thanks for your post. I appreciate it. Have a great night.

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Replies to "We look at each other when he speaks so I can in some cases read his..."

My husband is very hard of hearing, has hearing aids but still has much difficulty and gets frustrated. We’ve developed a limited sign language, done with pointing, finger motions, facial expressions, lots of smiles and the “I love you” sign. For talking, I have the house phone speaker function turned on and I call him from my cell phone. Feels silly to be in the Lazy-Boy and he’s 6 feet away at the computer desk, but it really works for verbal communication. Maybe amplification on both sides would help with the dystonia.