Hi, @mec4 - I'd also like to recommend this discussion that's been going for a few years to present day on chiari malformation - on type 1, in particular -https://connect.mayoclinic.org/discussion/chiari-malformation-type-1-20782d/. It might be interesting to read about others' experiences, and I'm sure they would be interested in hearing about yours, if you wish to share there.