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Ajovy

Neuropathy | Last Active: Feb 9, 2023 | Replies (3)

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@taterjoy

Hi giulia76 (@giulia76)! Good to hear you're feeling better on Ajovy and hopefully it will be well tolerated and effective ongoing. Amanda is correct, I have self-injected Ajovy every 28 days for about six months, for preventative treatment of classic migraines with aura. I was previously prescribed Emgality by my Neurologist at Mayo Clinic but I was paying out of pocket. When my insurer finally added a CGRP to the forumulary, they provide ONLY Ajovy, so I switched since it is much more affordable. It is very affective in preventing daily migraines to about 4-6 per month (requiring Rescue meds such as Frovatriptan and occassionally, acute injections of Ketorolac). I do not feel it is as effect\ive for my case as Emgality was, as my neurological symptoms were almost nil with Emgality. With Ajovy, I experience more ocular flashing scotoma, afterimages, dry eye syndrome, numbness on lower face, and more severe migraine symptoms when I do have a headache (sometimes need two Frovastain two hours apart instead of one). Both CGRPs given in my abdomen cause acute injection-site reaction (intense itching, redding, and swelling lasting a few days). Not enough to give up on it, as it is very effective overall. I hope you continue to do well on Ajovy!

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Replies to "Hi giulia76 (@giulia76)! Good to hear you're feeling better on Ajovy and hopefully it will be..."

Thank you for sharing your experience with me. I really appreciate it. I will keep using it (one shot every 28 days) and hopefully, I won't start having side effects. I read about some very bad experiences and I was a bit concerned, although still willing to try. I am desperate as I feel I am losing control of my body bit by bit. I don't think Ajovy will eliminate symptoms. Perhaps it will help with the migraines I have been experiencing more frequently recently but, just like Pregabalin first and Cymbalta after, it will help to manage the myriad of symptoms I have. I am still researching a cause for my small fiber neuropathy. I am seeing a rheumatologist (the third one) in March and going to a neuromuscular specialist in St. Louis in October. Fingers crossed. Thank you again.