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Staying strong and facing an uncertain /certain future

Caregivers | Last Active: Jun 22, 2023 | Replies (60)

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@loribmt

He’s in great hands at Mayo!! You too! ☺️
I enjoyed your little story about the ride in desert and pulling the ‘c’ card! LOL. My husband and I have some of those stories too that can only be appreciated if you’re ‘walking that walk’… Gallows humor or whatever it’s called. Keeping a sense of humor is vital through out treatment, I swear.

I hate to break it to your husband but he probably will ‘feel like crap’ for a couple days here and there. It’s usually the fatigue and malaise…especially when he’s so physically fit otherwise. He’s not used to feeling ‘off’ so when/if it happens it feels much more pronounced. That’s what was tough for me. Not 3 weeks before I was diagnosed with AML, I’d still been walking 10 miles a day! Then boom…within 3 weeks I was on hanging on by a toenail! The first 5 weeks I was in the hospital getting stable. But then every 28 days I went in for another week of chemo. By the time I was ready for another round, each time I was back to feeling pretty good. I have pictures of me with my chemo IV bag and cart, pushing it around my unit 4 miles a day! 8 rounds around the bed tower was 1 mile. I’d do that 4 times a day! My doctors and nurses were adamant that my positive behavior with walking and attitude helped me recover faster. So if your husband can keep up some effort during the day, that will really be beneficial for him!

And, in your defense…keep nagging. Staying germ free is super important right now. Masking if you’re out in the UTV too…fungal infections can be deadly.

Sending an air hug to both of you! ☺️

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Replies to "He’s in great hands at Mayo!! You too! ☺️ I enjoyed your little story about the..."

Hi Lori,
You were right, a lot of my fears, thankfully, didn’t happen. Val tolerated the Rituxan and bendustamine very well! Back tomorrow for another infusion of bendustamine and then a month off. The regimen is a little different than what we thought, but, it’s still two days of treatment, once a month. We are both pooped. Off to bed❤️❤️