First Post-Treatment Scan: Uncertain about next steps

Posted by bpb @bpb, Jan 23, 2023

Hello Friends,

I had a consult with my radiation oncologist on Friday about the scan results. The good news is still no lymph involvement and she says that the targeted SABR treatment for 2 tumors is working. However, there are 2 new nodules in the same general region and perhaps the left adrenal gland is becoming involved as it had uptake. Her plan is to wait 3 months and do another scan. In the moment, I felt fine with this news but over the weekend, I have become rather upset and wonder about getting a second opinion. I am clear I had unmet expectations and hopes that the outcome would be much clearer and further along with no new tumors. Open to support, ideas and tips for so much uncertainty. Just when I get used to the level of uncertainty, it seems to get way more uncertain!!

Thank you!
BPB

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bpb | @bpb | Feb 7, 2023

In reply to @colleenyoung "Any update @bpb? Did you meet with your medical oncologist?" + (show)

Hi Colleen,

I am wending my way through the institution's work flow. Meaning I was told to ask the thoracic oncology surgeon (who I haven't seen since September & who handed me off to Radiation Oncology at that time) to refer me to a medical oncologist. I've been busy composing a letter to send her outlining the reasons a medical oncologist needs to be brought on board.
(I've been busy doing other things as well.) My lung cancer support group encouraged me to follow through and so I am slowly doing that.

I am working on the best wording and tone . . . . I want to get it right so I get what I need! 🙂

BPB