Hello @trishanna and @suzanne321, Thank you for posting to our Mayo Clinic Connect community site! Here you will meet others that are looking to talk with someone who is potentially experiencing a similar situation. Please know that we do not give medical advice, however we encourage you to share your story so we can all learn from each other.

I'm sorry to hear both of you are troubled by such symptoms. That must be tough to deal with on a daily basis.
@trishanna, Have you looked into VEDA (Vestibular Disorders Association) https://vestibular.ong/#? They are a major support group run by a nurse practitioner that you may be interested in. They have a significant amount of literature, most of which has been vetted through a scientific advisory committee. You could check to see if they have information on Chronic subjective dizziness (now called Persistent Postural-Perceptual Dizziness).
@suzanne321, Welcome to our community! Suzanne,you said that you have been living with this for 6 years. Are there days or weeks that seem to be better than others? Does the time of year affect your tinnitus?

I would like to introduce you both to @kariulrich, one of our Mentors on Connect, who has recently discussed the topic tinnitus. We will be sure to continue to connect you with other members who come here to discuss tinnitus, dizziness and or Menieres.

If you are interested in more information or obtaining an appointment at Mayo Clinic, please click here- http://mayocl.in/1mtmR63. I do know that Mayo Clinic ENT in Rochester has literature on Persistent Postural Perceptual Dizziness. You would be able to request that information through our appointment line.