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DiscussionAnyone have Cutaneous T Cell Lymphoma?
Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)Comment receiving replies
Replies to "Hi. My husband is 58 and we noticed some rashly looking patches on his skin and..."
Hello @madisong Welcome to Mayo Clinic Connect. Cutaneous T Cell Lymphoma is a bit of a rare condition. I didn’t find many members in our forum but we do have a couple in this discussion. It is an older discussion but I’m going to tag the members and hopefully they’ll pop back into the conversation so that you and your husband can get some suggestions and feedback.
In the link provided below, fellow members,
@cindylb @carlos12 @dee081772 @taddyp have all talked about their experience with CTCL, though I believe Cindy’s diagnosis was changed later.
Cutaneous T Cell Lymphoma
https://connect.mayoclinic.org/discussion/cutaneous-t-cell-lymphoma/
Here are a few informational articles about CTCL you might find helpful.
https://www.mayoclinic.org/diseases-conditions/cutaneous-t-cell-lymphoma/symptoms-causes/syc-20351056
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https://www.oncolink.org/cancers/lymphomas/cutaneous-t-cell-lymphoma-ctcl/cutaneous-t-cell-lymphoma-ctcl-staging-and-treatment
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https://my.clevelandclinic.org/health/diseases/17940-cutaneous-t-cell-lymphoma
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https://lymphoma.org/understanding-lymphoma/aboutlymphoma/nhl/ctcl/
It’s really positive that your husband got an early diagnosis. From my understanding most cutaneous T-cell lymphomas grow very slowly and aren’t life-threatening. He had the biopsy so now you’re waiting for blood work. Is the steroid cream helping his symptoms?