Amyloidisis of the mouth and myeloma

Posted by shorelady @shorelady, Feb 6, 2023

Does anyone have Amyloidisis in their mouth??
What treatments have helped get rid of the purple sores..
Also have myeloma which is better after trans plant but not my mouth
Any info would be appreciated..
I do not qualify for trails since I have
Myeloma

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Ginger, Volunteer Mentor | @gingerw | Feb 6, 2023

@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and this is your first post.

Having a chronic condition like multiple myeloma certainly can change possible treatments for other issues, can't it! I personally know the disappointment of that.

Here is what Mayo Clinic has to say about amyloidosis and treatments: https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178

What type of amyloidosis have you been diagnosed with? I understand there are different types.
Ginger

Colleen Young, Connect Director | @colleenyoung | Feb 6, 2023

@shorelady, I'd like to add my welcome along with @gingerw and tagging other members who have both myeloma and amyloidosis like @jan52241 @tlcox49 @mamaellie @beckyoutlaw1115 to share their experiences. You might be interested in this older but related discussion:
- Current diagnosis is Amyloidosis and multiple myeloma: https://connect.mayoclinic.org/discussion/what-a-shocker/

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