← Return to MGUS + pulmonary sarcoidosis

Discussion

MGUS + pulmonary sarcoidosis

Blood Cancers & Disorders | Last Active: Jun 27, 2023 | Replies (16)

Comment receiving replies
@birk17

Yes he is aware of everything. All started with routine physical and blood work with my PCP. Next thing I know he’s referring me to the hematologist who ran more extensive tests, bone marrow biopsy and CT scan. He didn’t specify what type of sarciodosis, he just said my numbers were elevated. CT scan showed inflammed lymph nodes mainly in abdominal area. I’m making changes in my diet while I wait to see rheumatologist. So far no bone pain but my energy levels fluctuate alot. One day I feel like I’m back to myself and the next I have trouble climbing the stairs normally. It just scares me that a lot of my numbers were elevated and platelets are going up and down. I know he is the expert but it’s still unnerving.

Jump to this post


Replies to "Yes he is aware of everything. All started with routine physical and blood work with my..."

I also have red/brownish spots on my skin. When everything started I had small red spots all over my abdomen. I thought it was just an allergic reaction to something. Then spots would appear on my legs, then go away, appear on arms and then go away. Now I have reddish/brown spots that have not gone away in months. What I find interesting is they are exactly where some lymph nodes are: armpit, above clavicle and inner thigh. Has anyone else experienced these spots?