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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)
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@scooterbill

Actually all of the above. He is married but his wife works 5 12 hours shifts at a hospital. All he is doing now is sleeping all the time. He says he is to tired to talk and doesn't want me to mention his illness to anyone outside of our family. A little history for you: He has been going to doctors for over 3 years trying to find out what was wrong with him. He started out not being able to eat without getting sick and feeling bad. But he continued his life working and not looking like anything was wrong with him. Approximately 3-4 months ago he got Covid and then it turned into pneumonia. That put him into a downward curve. He went to the VA and they ran test and found out the problem. He is not doing well and my daughter is a RN and wants to get him somewhere that will work faster than the VA. I feel like my hands are tied and I do not know what to do. Can you give me some advice please?

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Replies to "Actually all of the above. He is married but his wife works 5 12 hours shifts..."
Rosemary, Volunteer Mentor | @rosemarya | Feb 7, 2023

@scooterbill, Advice - I have none, but here are some thoughts.
My first is a question: Is his doctor following his health situation, or has he shared what is going on? Since he if feeling so poorly, he might need someone to contact the doctor. A doctor can only act of he/she knows what is happening. Your son's current nausea. not eating, sleeping, and general downward curve are indications that his doctor should be kept informed.

Does your son have insurance that would cover him in a non VA setting? If he does, that could be a resource to tap into. There should be a patient rep or ombudsman at the his VA, Has his wife spoken to them for resources?

Scooterbill, Your son needs nutrition. When I had nausea my GI suggested tat I try Ensure or similar nutritional drink. Yes, I had a gag response, but drinking it cold with a scoop of ice cream helped me to get it down.

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