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Hi Mortysdad…
I am very interested in your progress with Pegasys for ET JAK2. I was started on 500 mg HU daily but started with daily headaches. I was taken off it for a few weeks and restarted on 500 mg HU every other week. Well, headaches have started going from mild to now every day and sometimes a migraine. When I see my hematologist I think Pegasys might be in my future.
Did you start weekly, dosage, progression?
Thank you, Eileen
Replies to "Hi Mortysdad… I am very interested in your progress with Pegasys for ET JAK2. I was..."
Hi Eileen, I have been on Pegasus for 7 weeks, at a dosage of 45 mcg weekly. Last week I had my blood drawn and my platelets came down from 588 to 320, into the normal range. Unfortunately my white blood cells are now a little less than normal. I am going to continue this dosage for another month and have another blood draw. I have really not experienced any side effects from the drug up to this point. I have had ET for 30 years, but only recently found out I had JAK2, so I accepted that I needed to do something. Best of luck to you.
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Hi Eileen,
So i have been in Pegasys for 3 months now. I inject once a week and use only 1/4th of a 180m vial which is standard size. This is a starter dose and my hemo may raise. I have my 3rd blood draw tomorrow. I started at 950 platelet count and went to 900 then 869. My only side effects are less sounds sleep, but I have more energy and less itching. So, so far, pleased with the drug overall. It is very $ as it is a tier 5 immunotherapy drug. I like that over a chemo drug like Hydroxy. One builds, one tears down, or at least that's what it sounds like to me. Hope your decision gives you a better pathway to healing. I'll post my numbers as this will be 3 months of data...be well!