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New Cystic Fibrosis (CF) Diagnosis

MAC & Bronchiectasis | Last Active: May 13, 2023 | Replies (25)

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@lindam272

I was diagnosed with CF after seeing my bronchiectasis get worse and taking a sweat test after all other options had been exhausted as to why. I was 65 at the time in 2015. I have a rare mutation and am not on any modulators. I have had MAC (2016 which led me to this group) which is currently stable and after being in the hospital with exacerbations 4 times in 2021, I have been stable through 2022 and currently. Such a relief! There are many support groups and resources for CF patients and you may be surprised at how many people are late diagnosis these days. @lindam272

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Replies to "I was diagnosed with CF after seeing my bronchiectasis get worse and taking a sweat test..."

Glad to hear you have been stable in 2022. Hope it continues. What regimen do you follow to keep your lungs clean? I was surprised to hear that CF can be a late diagnosis. Thanks for the info!