New Cystic Fibrosis (CF) Diagnosis
Haven't posted here in a while. My bronchiectasis was not improving, despite my twice-daily breathing treatments (7% saline) and SmartVest. My pulmonologist at Mayo was curious about a cystic fibrosis variant, so he ordered a sweat test. To my surprise, that came back positive. So Mayo then ordered a DNA analysis from Johns Hopkins. After a number of weeks, that came back showing a variant of cystic fibrosis. Because of my clinical presentation, etc., Mayo Clinic has now diagnosed me as having cystic fibrosis! I've got to set some kind of record to be diagnosed with CF at the age of 73! In any event, I'm about to start Trikafta and would appreciate any advice if anyone else happens to be in my situation….