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Multiple Myeloma

Blood Cancers & Disorders | Last Active: May 10, 2023 | Replies (56)

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@henriques

But knowing it's a chronic disease makes life very unsettling. For how long is it that you have been diagnosed and what is your age if you don't mind me asking?

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Replies to "But knowing it's a chronic disease makes life very unsettling. For how long is it that..."

@henriques, I believe you were asking this question of @carolee888 or perhaps @gingerw. I'm tagging them so they see your questions.

@henriques I will be 70 this year. I was diagnosed with MGUS November 2017, smoldering myeloma November 2018, Active Multiple Myeloma November 2019, and started chemotherapy August 2021. I have been on chemo since then. In addition to the mm, I am a chronic kidney disease patient [unrelated to the myeloma] and am on daily dialysis. This complicates my case, but i have a marvelous team who works together.

By the way, the timeline demonstrated above is not the way most people advance. My hematologist/oncologist and I agree that I must be an overachiever! The vast majority of people go many years with no advancement of their condition.
Ginger