← Return to White Brain Matter Disease - Treatment Options and Clinical Trials

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@engelbee

So, ARE there any treatments or trials going on for this disease? My friend is 71 and has had this for several years now and no one here has even diagnosed her with it or any other disease. Her father had white brain matter disease and her psychiatrist has her on Seroquel but her husband has now taken over raising and lowering the dosage depending on how she's doing! She is alone 2 or 3 days a week and just wanders the neighborhood. She falls a lot, she can barely speak or do small things like use a phone or open a car door. I can find her no help in North Texas.

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Replies to "So, ARE there any treatments or trials going on for this disease? My friend is 71..."

I have not gotten formal dx yet but will soon I think from neurologist. Im a social worker and am well versed in psych meds. Seroquel is a powerful antipsychotic and can really knock you out and make you a zombie. Not sure why she’s prescribed this (schizophrenia, bipolar? Extreme anger?) while she may have WMD, sounds like it may have progressed to dementia. She needs to see a dementia specialist. I’m not sure where the closest major medical Ctr is but I would try there — and try to see if neurologist there has experience with WMD. Hopefully they could run the appropriate tests and initiate treatment— most important is lifestyle. There may be meds that help. She shouldn’t be alone, both for safety and lack of social engagement. Some combination of friends, family, church folks and certified nursing assistant.