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Recurrence with Metastasis

Neuroendocrine Tumors (NETs) | Last Active: Feb 5, 2023 | Replies (5)
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@suestroinski

My current med care team is at the U of M. They have recommended a 3 month wait and recheck.

I am coming back to Mayo for a second opinion for both the diagnosis and treatment plan.

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Replies to "My current med care team is at the U of M. They have recommended a 3..."
pjsheridan2022 | @pjsheridan2022 | Feb 5, 2023

My experience is similar to Caitlin’s, I’ve had 3 treatments at Mayo with the 4th in March. Mainly flu like symptoms for 3-5 days. Won’t really know if there is a plan going forward until I’m done with the Luthera and have updated scans which I think I was told would be June.
Monthly lanreotide, had some fatigue when I started in March 22 but my body seems to have adjusted to the shots.

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