1. < Esophageal Cancer

3-year survival rate of those who have had esophagectomies at Mayo

Posted by protonbeam @protonbeam, Feb 1, 2023

My wife has cancer of esophagus. For past 3 years IU Med Center has been lasered out cancer; however, Barrett's high-grade dysplasia keeps coming back. Trying to decide whether or not to switch to Mayo. I hate to seem morbid, but does anyone know what the 3-year mortality rate is for Mayo? I have heard a lot of good about Mayo

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naomicanada | @naomicanada | Feb 3, 2023
In reply to @advocatepaul "2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at..." + (show)
@advocatepaul

2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at Mayo in Phoenix was just coming out of the ground. My radiation was done the old way, which is still the most popular method all over the US. In 2012 the Mayo team in Phoenix saved my life even though the Proton Beam unit was not yet operational. This week is my annual testing and procedure at Mayo and I feel great. There is a perception by most humans that a generic name of something means that all available with that name can do the same thing. A Hummer and a Smart car will both get you from point A to point B but the Hummer can easily pull a 5000 lb. trailer and the Smart car cannot. Mayo is absolutely the best-run, most highly skilled, most caring, most capable medical/healthcare organization on our planet!

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Paul you helped us so much with the TOMs and potential constipation !
My mom is doing her 6th immunotherapy(half way) and scans are good.
Thank you paul

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protonbeam | @protonbeam | Feb 3, 2023
In reply to @lori57216 "I have an excellent team @ Mayo / Rochester. They removed my cancerous esophagus April 2020...." + (show)
@lori57216

I have an excellent team @ Mayo / Rochester. They removed my cancerous esophagus April 2020. They directed my Oncologist team here at home (4 + hrs. north). I need to return to Mayo in March for surgery to repair a hernia in my diaphram.
I very strongly suggest you contact Mayo. The level of expertise, bedside manner, patient /family oriented is second to none!!!! I cannot express strongly enough.
Prayers for healing & strength as you & your bride continue your journey,
Lori

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Thank you so much. It is so nice talking with some who has been through it.

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protonbeam | @protonbeam | Feb 3, 2023
In reply to @advocatepaul "2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at..." + (show)
@advocatepaul

2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at Mayo in Phoenix was just coming out of the ground. My radiation was done the old way, which is still the most popular method all over the US. In 2012 the Mayo team in Phoenix saved my life even though the Proton Beam unit was not yet operational. This week is my annual testing and procedure at Mayo and I feel great. There is a perception by most humans that a generic name of something means that all available with that name can do the same thing. A Hummer and a Smart car will both get you from point A to point B but the Hummer can easily pull a 5000 lb. trailer and the Smart car cannot. Mayo is absolutely the best-run, most highly skilled, most caring, most capable medical/healthcare organization on our planet!

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Thank you. I am so glad to hear that you are a 12-year survivor of an esophagectomy! It appears that my wife will be going to the Florida location. May God Bless you.

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davidr1 | @davidr1 | Feb 3, 2023

My wife had her esophagus removed in December 2017 and has been doing great. The use and care of the feeding tube was quite easy and nothing to fear. They will teach you. We had additional complications because of her diabetes. She too had been having treatment for the Barrett's esophagus for several years. Fortunately the Barrett's treatment was being done at Mayo in Rochester. As soon as the cancerous neoplasm was discovered we were referred to a surgeon and the surgery was performed 3 weeks later. The key to esophageal cancer is early treatment. I don't believe there is a place that does more. If not daily, at least several esophagectomies are performed each week. The 3 year survival statistic is a mute point since whatever it is is better than anywhere else. Because of the dedicated teams at Mayo my wife has been able to enjoy 5 additional grandkids and she is back to taking care ❤ of me like she has done the last 50 years. Bottom line: get your butt to Mayo.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 3, 2023
In reply to @protonbeam "Florida . Do they have Proton Beam Therapy?" + (show)
@protonbeam

Florida . Do they have Proton Beam Therapy?

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Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction.

If proton beam therapy is recommended by Mayo experts, then the team can work with University of Florida department or Florida patients can choose to have proton beam therapy at the Rochester, Minnesota campus.

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1 reply
protonbeam | @protonbeam | Feb 4, 2023

So does U of Florida have the Proton Beam? My wife insists on going to Florida campus of Mayo

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protonbeam | @protonbeam | Feb 4, 2023
In reply to @colleenyoung "Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction. If proton beam..." + (show)
@colleenyoung

Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction.

If proton beam therapy is recommended by Mayo experts, then the team can work with University of Florida department or Florida patients can choose to have proton beam therapy at the Rochester, Minnesota campus.

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Does U of Florida have Proton beam. My wife insists on going to Florida campus of Mayo

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 4, 2023
In reply to @protonbeam "Does U of Florida have Proton beam. My wife insists on going to Florida campus of..." + (show)
@protonbeam

Does U of Florida have Proton beam. My wife insists on going to Florida campus of Mayo

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Yes, University of Florida offers proton beam therapy. Mayo Clinic works with U of Florida for Mayo requiring proton beam therapy.

REPLY
scarlet/tanager | @scarlettanager | Feb 13, 2023
In reply to @advocatepaul "2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at..." + (show)
@advocatepaul

2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at Mayo in Phoenix was just coming out of the ground. My radiation was done the old way, which is still the most popular method all over the US. In 2012 the Mayo team in Phoenix saved my life even though the Proton Beam unit was not yet operational. This week is my annual testing and procedure at Mayo and I feel great. There is a perception by most humans that a generic name of something means that all available with that name can do the same thing. A Hummer and a Smart car will both get you from point A to point B but the Hummer can easily pull a 5000 lb. trailer and the Smart car cannot. Mayo is absolutely the best-run, most highly skilled, most caring, most capable medical/healthcare organization on our planet!

Jump to this post

Hello,

It’s great to hear you’re doing well. When I read the prognosis of this disease, it can cause great distress. You provided a great success story and hope for others. I have been to Mayo in Rodchester. Hear great things from people that were treated there. I’m Canadian and will keep this option in mind for when I need treatment if things don’t go well here.

REPLY
Lori57216 | @lori57216 | Feb 14, 2023
In reply to @davidr1 "My wife had her esophagus removed in December 2017 and has been doing great. The use..." + (show)
@davidr1

My wife had her esophagus removed in December 2017 and has been doing great. The use and care of the feeding tube was quite easy and nothing to fear. They will teach you. We had additional complications because of her diabetes. She too had been having treatment for the Barrett's esophagus for several years. Fortunately the Barrett's treatment was being done at Mayo in Rochester. As soon as the cancerous neoplasm was discovered we were referred to a surgeon and the surgery was performed 3 weeks later. The key to esophageal cancer is early treatment. I don't believe there is a place that does more. If not daily, at least several esophagectomies are performed each week. The 3 year survival statistic is a mute point since whatever it is is better than anywhere else. Because of the dedicated teams at Mayo my wife has been able to enjoy 5 additional grandkids and she is back to taking care ❤ of me like she has done the last 50 years. Bottom line: get your butt to Mayo.

Jump to this post

I had mine removed at Mayo / Rochester also. April 2020. I am coming up on my 3rd year of
"survival" and doing pretty great I must say. Will go back to my Mayo team the first part of March to have a diaphram hernia removed. I truly believe they are the best of the best!!!!

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