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Sinusitis but can’t get diagnosis

Ear, Nose & Throat (ENT) | Last Active: Feb 5, 2023 | Replies (6)

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@nrd1

@303wendy

What was the goal of sinus surgery by the ENT?

Did the ENT explain that sinus surgery is not a cure, but an adjunct to ongoing topical therapy?

What type of therapy had been instructed post surgery and moving forward?

And given that many courses of antibiotics, hopefully you are doing things in the mean time to help your overall immune system get back to optimal levels.

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Replies to "@303wendy What was the goal of sinus surgery by the ENT? Did the ENT explain that..."

Hi - the surgery was for bacterial infections that wouldn’t go away. My ENT believed I would have great relief. At the time of my surgery, I didn’t yet have my CF diagnosis.

He’d given post-operative instructions of saline sprays, Tylenol for pain and Afrin. I followed his orders and became sicker despite that.

Once the illness continued he had me do nasal washes with budesonide and mupirocin (and occasionally another antibiotic whose name escapes me at the moment) for 7 months with no relief. I also had several rounds of prednisone with and without antibiotics.