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Sinusitis but can’t get diagnosis
Ear, Nose & Throat (ENT) | Last Active: Feb 5, 2023 | Replies (6)Comment receiving replies
@303wendy
Welcome to Mayo Clinic Connect!
I’m so sorry to hear about your continued suffering after your sinus surgery as well as a diagnosis of cystic fibrosis.
Is your cystic fibrosis doctor a specialist in CF? Are you being treated at a major university medical center?
I agree that you should apply to Mayo Clinic. Being diagnosed as an adult may mean milder disease progression but you are in great need now of expert CF evaluation and treatment.
I assume you had applied to ENT at Mayo and you were denied. Apply again under Cystic Fibrosis- ask your CF doctor for help if needed with the application.
I hope that will work out.
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Hi Ingegerd. Thanks for your response. Yes, I’m a patient now at the CF clinic at National Jewish and have a wonderful doctor who specializes in late diagnosis, among other things. He has helped me as far as he can, and he’s the one who prescribed the fluconazole for me.
The ENT department at Mayo didn’t want me, but they did take my application over to the CF department for consideration. I haven’t heard back yet, but they just sent it over last week.