Hi @l0lag0lag0b3 😊
I can't believe how similar all of our experiences are. I really appreciate hearing your story.... You have no idea how much!
I sometimes get mentally and physically exhausted trying to advocate for the proper care. It frightens me and makes me feel insecure.
I have learned how difficult it is to get consensus on the correct treatment for these different viruses. Which virus was your Acyclovir treating?
I took Valcyte for the CMV and now I have reduced immune suppression for my current BK virus. My Allosure and creatinine blood tests are both showing an increase which makes me nervous.
I really like your idea of finding a local transplant nephrologist that specializes in transplant.