Post-Nissen Fundoplication Problems: What helps?

My variety of post operative gastropanesis will never correct itself.. those nerves are a hairnet like network that should contract to ease the stomach processed foods out .. some of mine foods take 3 hours or more to leave on their way.. sometimes I get the regurgitation that tastes so sour.. many hours after eating.. one example: I ate chicken with broccoli...hours later I vomited just the broccoli.. my Mayo GI doctor said I never have to eat broccoli again.. they prescribed the generic Nexium and Mirtazapine to help me think that I want to eat..

Ugh that sucks. I haven’t vomited or had the urge, nor have I had nausea. I haven’t had too much bloating, but I do have a lot of gurgling in my abdomen after I eat. I’ve only used the bathroom twice in the ten days post-surgery, but I’ve also not eaten a whole lot. I think I’m getting hungrier, but not much. I was eating more the first day than I am now. The sour taste has been nonstop since the surgery. I ate an apple a little while ago (first solid food) with no issues. But shortly after, I had extra acid or sour taste in my mouth, and it had a menthol tinge (I drank water with peppermint oil five hours ago). I just took some nexium in hopes the acid goes away. I was worried I have a loose wrap- now I’m worried it’s something worse

With my post operative gastropanesis, When I eat too fast.. when famished.. that's when I vomit.. that happens a couple times a week.. having my smart phone helps.. to spend time with every 6-8 bites...setting fork down between bites.. having a companion to talk with.. never use a soup spoon..with oatmeal or soup.. too big.. develop a discipline of not putting too much in that restricted stomach at One time..

I hope someone can help me understand what to do with my situation. It doesn't quite mirror any of the accounts here, but it does come close. I had a Nissan and hernia repair in early 2020. I had suffered with excruciating GERD for 21 years taking PPIs every single day of my life and vomiting frequently. My GI doctor for years told me to wait and see if some more reliable surgery procedures develop because Nissens had high failure rates, but then she said it was probably time for surgery, and that one of the foremost surgeons is in my area and she provided the referral. Better to get it done while in relatively good health, she said, and surgeon agreed.

I found the Nissan operation to be relatively "easy" insofar as I spent just one day in hospital and I did not take a single pain reliever. The GERD disappeared, I lost 24 pounds in 3 months staying on a soft, non-sticky food regimen. Bathroom functions went back and forth from not being able to poop or fart/belch to severe dumping syndrome and unbelievable gas. I have never vomited since surgery, I do not exercise other than walking, and I don't lift heavy objects. I had two follow ups with the surgeon (no tests or exams, just talking) and then Covid happened and their practice moved to another management company. I never heard from them again, and because I had no acid reflux I thought everything was good. Then, on an unrelated CT scan, it was noted that I had a very large hiatal hernia. I went back to the surgeon, he ordered a Barium swallow test, and low and behold my hernia that was 6cm before surgery is now 10cm (giant), the wrap has slipped, but the mesh is in place. He surmised that the mesh and scar tissue is the only thing controlling acid reflux, but admits that it will recur.

Bottom line, the surgeon is poo-pooing me, telling me that it's unfortunate, but that I shouldn't be complaining because I'm not having acid reflux (just phlegm). At the same time, he's telling me that the hernia will grow, reflux may come back with a vengeance, impact my breathing and possibly strangulate other organs. I have talked with two other surgeons, one thoracic and another general. My original surgeon said he will not perform a re-do, and he has no advise as to how to live with the hernia. He's not even telling to come back in 6 months; he just wants me gone. The second opinion surgeon said that a laparoscopic surgical redo is possible, he's done them, but the recovery period is much more painful and prolonged and it's not a guaranteed fix forever. I'm scared because the hernia is huge and won't get smaller, it can only get bigger and meanwhile I'm getting older, now dealing with high BP and arthritis. I did gain back the weigh, but am exactly the same weight as I was at time of surgery, 172 lbs.

How long do I wait? In just a couple of years, the hernia increased tremendously, so I can only imagine what's on the horizon. What are the dangers of having a hernia this large?

how are you @ken82 how do you feeling now?

It's been 7 years since the botched Nissen surgery.. Each meal remains a challenge.. keeping weight on is an essential ongoing battle.. I continue to take the Mayo prescribed meds.. if I eat too fast ..food comes up..that happens 3 times a week.. I'm 85..and doing better than many of my cohorts...

Not sure, have you tried the GI team at Mayo? I had an excellent surgeon and was well-informed that surgery would not be a forever fix and there would always be the possibility of returning hernia. It has been 7 years for me and generally I feel like the operation was a life saver. Sure there are restrictions but I felt prepared for what I have experienced. I think you should seek a team member at the clinic if you haven't yet.

Who has stomach and back spasms after a nissan? Sometimes just comes on for no reason. Pain radiates to back. So similar to intense spasms prior to nissan. I have asked for anti spasmodic meds Drs seem reluctant to give. Surgery was Oct 27 2022. Anyone?

I have had nothing but problems after my surgery. Not wanting to eat, never hungry and when I do eat my stomach hurts and feels like I have so much air. So painful and I have had swallow study and another scope. What is happening

i am sorry you have had a rough time. i had the nissen done a few years ago. i had similar symptoms for quite a while post op. the surgeon explained that can happen due to manipulation of the stomach. in talking to my gastro doctor, he felt i had developed gastroparesis. i take reglan to improve stomach motility and use zofran for nausea.