I am sure I have lupus...but I don't?
Hello all,
I have all of the symptoms of lupus, except for the butterfly rash. I had one ANA-positive (speckled) test and tested positive for anti-phospholipid antibodies at the same time. Both values were twice the "max normal" value. However, the ANA test I had done today came back negative (1:80). All of the lupus markers also came back normal.
I am so confused and so crushed. I'm only 21 years old and I can't do regular day-to-day activities because of pain, but I have no idea what's causing it. I've been searching for three years, but my doctors still don't have an answer for me. I was told to keep using ibuprofen, lidocaine, and methocarbamol for the pain, but even with those meds, I still need a cane to walk because of the pain in my joints. I need real answers and I have no idea what to do next.
Any advice or stories to share? I'm really struggling to find the motivation to keep searching, so I'd love to hear what worked for others.
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Have you gone to a dermatologist a rheumatoid Dr kept saying no to me because of my test results coming back negative but a dermatologist was able to find things my regular doctor couldn't. Try calling them they are a big help! U don't need a referral for most of them. Just call.
Wow! I am sorry to hear about your experience! I have been having issues with dizziness, nee headaches, and fatigue. My PCP is sending me for a brain MRI to see whether or not I have had a stroke, but is hoping it is not the case. She wonders if I have BPPV, which I have never had before this surgery thst started all of the other issues in Nov 2022. Thank you for sharing your experience amd expertise!