@sharonfranks1119 Do you know what type of stones your system is producing? There are different types, and while diet may have a part, so can genetic factors. It certainly is worth your while to question your medical team to find out, so you can be more educated on what to do for your particular case.
You see here we share many experiences. As @collegeprof and many others, including myself, will usually say, diet, hydration, exercise, lifestyle, and gathering knowledge go a long way to staying on top of our kidney disease. First, figuring out why you have it is a great foundation for knowledge to follow. Diabetes? High blood pressure? Those are the two main causes, it appears. Genetics? Long term use of certain medications? Lifestyle choices? Addressing the root cause and proceeding from there seems to work best. Remember each of us is different, and what is best for one may not work for you, but you certainly have an insight to ideas to try. If you do not feel your concerns are being addressed adequately by your medical team, ask them why, and if need be, change your doctors. I have done this in the past, and it made all the difference.
https://www.mayoclinic.org/diseases-conditions/kidney-stones/symptoms-causes/syc-20355755
Ginger
Thank you for your kind message. I have, at last check, calcium oxolate stones. I see a nephrologist on Tuesday, my urologist thinks it may be GI related as opposed to diet. I had gastric bypass surgery in 2000 and it caused malabsorption syndrome. I just had bloodwork and a urine test this morning, so by the time I see the nephrologist my labs will be back. I don’t have high blood pressure or diabetes, so that has ruled out the obvious trouble makers. I do advocate for myself, also have a caseworker who helps me manage my many health issues. I have no problem changing a doctor who ghosts my questions. I’m hoping I finally have the right team of doctors. Reading the posts here made me realize there is more to kidney stones and CKD than I thought. I appreciate your input and the advice I read from others.