Hello @becky65, I would like to add my welcome to Connect along with @lioness. I know it must be frustrating not being able to find something that works and being in pain a lot with no answers. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where other members are discussing similar symptoms and your post will have more visibility.

> Groups > Ear, Nose & Throat (ENT) > extreme outer ear pain
-- https://connect.mayoclinic.org/discussion/extreme-outer-ear-pain/

I had not heard of hearing being attacked by an autoimmune disease but a little searching confirmed that it can happen. Here's what I found on the American Speech-Language-Hearing Association website.

Autoimmune Inner Ear Disease
— https://www.asha.org/Articles/Autoimmune-Inner-Ear-Disease/

Are you able to share a little more about your diagnosis or symptoms?