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Polymyalgia Rheumatica (PMR) | Last Active: Feb 2, 2023 | Replies (30)
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Replies to "Hello @chochosana, Welcome to Connect. Thank you for sharing your story on long term prednisone use...."
Thank you John for your reply. I do have some assistance but I’m going to move next to them and get home health and try and stay somewhat independent. I’ll have a ramp built and I hopefully be able to stay on my own for a while longer. I was an RN for 20 years and so I do my research and will get into physical therapy once I get settled. I had to move a few hundred miles away and then go from hotel to apartment etc. until I can get my place fixed and change medical insurance and all my doctors etc. so there’s been a couple of months where I had to move around and my daughters been a big hel. if anybody has suggestions as to what I should do besides physical therapy that would be a big help. I have to see an endocrinologist as my adrenal gland, has shut down, so that’s going to be a few years of tapering off my prednisone , I’m still on 5 mg daily. O I will probably continue deteriorating at the same rate. I just found this website and I didn’t even know how to use it, so thank you for your suggestion about timeline.