I can't explain the hand issues with PMR either. I just wanted to say that I had hand issues too. My issues were more prevalent during my years with PMR. I had some minor hand issues when I was diagnosed with inflammatory arthritis some 20 years before PMR was diagnosed. My favorite explanation was that my problems with my hands were caused by a combination of inflammatory arthritis and PMR.
I used to tell my rheumatologist that my hands were like a barometer for how widespread the systemic inflammation was. My hands would get very stiff and sore when disease activity was the most active. I would wake up every morning and the very first thing I would check was how easily I could open and close my hands.
I had other problems with trigger fingers not to mention a spontaneous tendon rupture. The hand surgeon couldn't explain why the tendon connecting my thumb ruptured spontaneously.
I was diagnosed with "diffuse" peripheral neuropathy but the EMG/NCS focused more on my legs. They asked if they could check my arms in addition to my legs. I said yes and they said the peripheral neuropathy was in my arms too even though I wasn't symptomatic there.
The other problem I had was the feeling that my hands were freezing. This wouldn't happen all the time but it was strange how cold they felt sometimes in the summer. I would blow into my hands trying to warm them up like it was winter and freezing outside. My hands were always warm though but they felt like they were on the verge of frost bite,
I just think autoimmune problems and hands are linked somehow. It might be prednisone related because I'm off prednisone now and my hands aren't causing me any problems now. I'm still being treated for a deranged immune system but currently I'm taking a biologic and I'm off prednisone. I don't have the hand problems anymore like I used to.
Ps. I just read a really interesting scientific report on the vagus nerve and how the vagus nerve is completely responsible for all inflammation in our body. It sent out the directions on what to do..
Bottom line is the end of the conversation was towards whether soft tissue massages of your neck and shoulders seems to help get your vagus nerve back in shape-so to speak. This was not trying to say that everybody should feel they can get a massage and life will be grand. It just meant that you could help the vagus nerve by getting a soft tissue massage.😉🙏🏻
I’m pushing my husband towards that… decide who doesn’t love massages??!!!😉 and my HSA pays for it! Bingo! 😉