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@hopeful33250

Hello @peggymariejackson and welcome to the NETs discussion group at Mayo Connect. Given your family history of cancer, I can certainly understand your concern about your own NETs history. I have also had three surgeries for NETs in the upper digestive tract and like you, I also go to The University of Michigan. I have had no other treatment, however, just the surgeries.

Have you had any symptoms of carcinoid syndrome such as facial flushing, diarrhea, etc.?

You mentioned a medication with the ingredient of "secukinumab." Was this recommended by your oncologist or is it to treat another health condition?

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Replies to "Hello @peggymariejackson and welcome to the NETs discussion group at Mayo Connect. Given your family history..."

I take cosentyx for arthritis which I sometimes wonder if this could be causing my NET for I found info that Cosentyx causes NET,By looking over my meds I take more than Cosentyx with secukinumab in it.It is a biologic drug I have reached out to my doctor and the FDA both say it is not researche with causing it.I am so wishy washy about taking it,It helps alot because mine gets so bad that I cant move plus fibro.Just a mess.My Dr Enzler he is really good so I am sure he knows what he is doing.Just wonder because so many people have treatment.I feel better knowing someone is out there.I do have the flushing and diahrrea and have been having it for been years always said it was IBS.I get nausea alot.It hard to say for I am insulin dependent for diabetes.I live in the upper peninsula the care is not good at all.I wish you luck

Hi. I ask have had three surgeries and to date no other treatment. However, I was just diagnosed with another tumor that for numerous reasons is inoperable. Protocols not yet determined. I will post you. Smart to take your case to a university/teaching hospital.