classical hodgkin's lymphoma

Posted by birdy48 @birdy48, Aug 26, 2016

Hello, My name is Roberta and I was dx with Classical Hodgkin's lymphoma in 2014. I was at Duke U. in Durham, NC. My treatment was 2 times a month for 6 months. I was treated with ABVD. This is the standard of care at Duke. It went well, that is I survived it all. Truely do not remember all of those months because it was so intense. Lots of the side symtoms I had were typical. At least as typical as they can be in my situation. Mouth sores, Gastro intestinal pain. Back pain and shortness of breath. I stopped taking the medication which gave me the shortness of breath, about six weeks before the chemo ended. Nurses are so nice and patient with Cancer people. my mid - way through PET scan showed I had no more cancer present. My final PET scan showed that all the cancer was gone. That gives me a decent prognosis. Took some months to feel semi human again.. Yet I am now beginning to digest what happened and that I truly had cancer. I feel vulnerable and yet hopeful I will not have a recurrence.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

@lacey

Hi Birdy 48, I believe you sent the response to hopeful", instead you sent it to me " Lacey" Just checkin'

Jump to this post

Hi Lacey,
Email notices of all the messages posted in this discussion are sent to all the members taking part in the discussion. That means we have access to a whole community of people.

So great to hear about the Livestrong program you attend at your local YMCA. Combining physical activity with support from other cancer survivors sounds like a great pairing. What activities do you do?

REPLY
@lacey

Hi Birdy 48, I believe you sent the response to hopeful", instead you sent it to me " Lacey" Just checkin'

Jump to this post

Thanks Colleen, that explains why I getting everyones mail, interesting, keeping up. I do enjoy
the livestrong program, there are 15 cancer recovery or in treatment at this time, so much to learn
and very nice socializing. We walk , the other day , we walked around the YMCA building, huffing and puffing at the finish line haa. Than we worked on the machines, did around 10
minutes and felt invigorating, I go again today, looking forward to it all. I feel much better and I am
not so tired these days, its working. Hope your all doing great. Lacey

REPLY
@lacey

Hi Birdy 48, I believe you sent the response to hopeful", instead you sent it to me " Lacey" Just checkin'

Jump to this post

You're welcome. Here's more information how you can set your email notification preferences http://mayocl.in/2coxXJN You can help tailor the messages your receive to be relevant to you.

REPLY

@birdy48 Hello Roberta: I just noticed that it has been awhile since we have heard from you. How are you feeling? Did you start attending a support group? If so, has it been helpful to you? We would love to know how you are doing.

REPLY

Hi my self pradeep kumar from Bareilly I AM CHO at village area I have one patient she is 13 year old she diagnosed with hodgkin's lymphoma her family is very poor around 3 month ago she diagnosed it but his family not have enough money to take treatment so I jut wanted to know survival rate of hodgkin's lymphoma and it's curable or not because she is suffering from pain in her neck started definitely in swallow Doctor prescribe DICLO AND PCM her neck become more swallow lymph node it's slowly increasing

REPLY
@pk33248

Hi my self pradeep kumar from Bareilly I AM CHO at village area I have one patient she is 13 year old she diagnosed with hodgkin's lymphoma her family is very poor around 3 month ago she diagnosed it but his family not have enough money to take treatment so I jut wanted to know survival rate of hodgkin's lymphoma and it's curable or not because she is suffering from pain in her neck started definitely in swallow Doctor prescribe DICLO AND PCM her neck become more swallow lymph node it's slowly increasing

Jump to this post

@pk33248 Hello Pradeep, oh my goodness, I’m really sorry to hear about your young patient who was diagnosed with Hodgkin’s Lymphoma. It’s tragic that there won’t be any treatments because with it, this disease can be curable. But treatments need to start early in the cancer.

The two meds the doctors prescribed appear to be only pain relief and inflammation reducers. They will not do anything to treat the Hodgkin’s Lymphoma. I’m very sad to say, that without treatment, your young patient doesn’t have a very good outcome to the disease. Unfortunately, the cancer will continue to progress and the best you can do is to keep her comfortable.
This is just heartbreaking.
Are there no options for paying for treatments over a lengthy period of time?

REPLY
Please sign in or register to post a reply.