My life is getting to be useless

Posted by kazeiler @kazeiler, Jan 25, 2023

I am a 51 year old who has had everything go wrong with my body. When I was younger it was for severe migraines, then a large golf ball cyst in my right breast. Then PID which was so painful. Then endometriosis twice in 10 years and now again the pain. My abdomen started degrading to where there is almost nothing now. Just fat and skin no muscle. I’ve had atleast 30 surgeries. Including 3 pelvic prolapse surgeries. I then had been suffering for 15 years of Pheochromocytoma and diagnosed myself and was correct even though they said it wasn’t. I’ve always been correct when it comes to my body. A hysterectomy actually 2 times second to remove my cervix . So many surgeries and before each thing went wrong there was pain. I constantly begged for help. My body has been degenerating this whole time. I have issues with my feet and spine, neck and back. I’ve had to move quite a bit and some doctors were great but then we’d have to move. When I had Pheo I was treated like a dog and a drug seeker. The headaches were deadly. My heart rate would t go up in the hospital and I had no clue it was my blood pressure. Just thought hot flashes. Tremors, sweating. Hospital after hospital. Maybe 50 times or more. 15 years of it. I have PTSD from doctors. I miss my old ones but have to be where my husbands job is. I’ve been suffering with chronic pain all of my life. I’m in Michigan now where I’ve been doing everything they said paid for everything they did but still won’t put me back on my medication. I am now at home I do nothing. I can barely walk, sleep, sit. Anything. I can’t go anywhere or do anything I use to when I was being treated. When I was treated I had a job, did everything by myself. No I’m nothing! I’m literally dying in my house day by day. Has this world come to this, where my dog can get medication but I can’t. I have a psychiatrist but even she won’t give me clonazepam. I was on oxycodone and clonazepam. And other things I needed. I need a chance to be human again. Live without extreme pain. Cortisone shots, antidepressants and buprenorphine which doesn’t work at all. Or maybe a tiny bit. I cry everyday. Why? I have a prolapse again no pain treatment. Hernias, no pain treatment. My stomach muscle severe pain. When I was treated o never asked for more. I stayed on my same regimen day to day. Life was good I was still in pain but my doctors were good. I shouldn’t have to suffer this way. I’m writing this and I’ve never done this before but I wish a doctor could see me. A grown adult. I know my body better than anyone. I’ve tried everything in 30 or more years. I know what works. I pray for a humane doctor. I have just given up. Waiting or looking or even thinking there is one who cares about me. I can’t even shower. Takes me 3 weeks. But they don’t care. Please send me someone who will. pleas tell me what to do? Abby

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Try finding a doctor who works as a resident doctor in a hospital clinic. I believe the hospitals have less restrictions or friendly government oversight for prescribing opiods.

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@cookiegirl1944

Do you live in Minnesota? If so, are you near Burnsville?

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I wish I was I hear it’s better treatment there. I’m in Michigan.

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@jholland

If there is pain, it is medicine, if no pain, it is a drug. World never got that and druggies make it difficult for those with pain. PHARMA appeases druggies

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I agree with you it’s different when the people are buying it and using something on the street. The CDC is wrong though. The drug induced deaths are from street drugs and not Doctor’s prescriptions. The doctors only need to do their job and pee test randomly or all the time. even blood test for better answers.

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@cherieb

I have unrelenting abdominal pain after gallbladder surgery. Flare ups with burning URQ pain, acid reflux, can barely eat and lose weight quickly. Eating equals pain. Get on PPI and last flare I got control of in 3 months and off omeprazole. Recent flare no relief, pain is daily and I’m barely functioning, Drs have tried so many meds and sent to several specialists. Mixed opinions on going to a pain clinic from Drs. One says go one don’t. I am in counseling trying to learn techniques to cope, I agree about meds adding fuel to the fire but how does one function with constant pain? How do you get relief? This recent flare seems to have no end. Tests don’t reveal answers, but do have hyperparathyroidism as well and because of past same surgeries can’t locate so in limbo. Also multinodular thyroid they are watching because of Braf gene mutation abnormal but not cancer. Sorry to sound so rambling but what do you do for pain when you need help? Surrender to the opioids and Valium offered? Any helpful insight? Thank you

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I’m definitely at a loss because my feet the vary thing that gets you somewhere don’t work. Severe plantar fasciitis, my knees and hips have bad issues. Arena and hands as well. And like I said before all parts of my spine as well as having been cut in the abdomen at least 25 times. I’ve had pelvic prolapse 3 times and need surgery again. All have failed because of my muscular degeneration and endometriosis 3 times. I’ve had a hysterectomy but still keep getting it. They do laser the tissue but for some reason it keeps coming back. If I could walk without pain I’d be able to do so many things with my life. If I could use my arms, shoulders and neck I’d be golden, I just want a life! A normal life without severe pain everywhere.

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@msgrstclair

I have had the Nevro spinal nerve stimulator implanted and I have more pain now than before.

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So sorry. I won’t get it. They’d have to do my whole body and not sure I want it stimulated. I don’t sleep. Walk, go anywhere at all. I can’t sit for more than 20 min and can’t stand more than 10. Broke my tail bone 4 times from bad falls I think the lesions in my brain cause me to fall all the time. Wish me luck with the Michigan Pain Consultants hope to see them soon!

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@kazeiler

I wish I was I hear it’s better treatment there. I’m in Michigan.

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See if you can find a holistic clinic in your area.

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@missypurtee

I’ve read if a woman ever has endometriosis she’s most likely going to develop an immune disorder or 2

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I have autoimmune thyroiditis and a very rare Pheochromocytoma 1-50milion super rare because my metinefrin level wasn’t very high. I get sever stomach and chest pain daily. And my memory is going super fast. I’m so scared and yet I’m so much pain. Severe headaches as well.

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