@happyat76 @lioness @anniemaggie @nibor63 @franjan @angeloneday @poetny
Hi everyone! It is nice to see that I am not crazy and a group of us exist who understand each other's miserable ear pain.
We seem to have some variances associated with the pain as well as some similarities. I wonder how many of us share any of the following:
*Severe pain affecting both ears, mainly when lying on one's side with the head and ear resting against the pillow (My ears cannot touch anything during sleep, including a pillow.)
*Autoimmune disease
*Above average stress level
*Small fiber neuropathy
*Raynaud's
*Definitely over age 29, 39 or higher! 😉
In regards to the foggy vision and vertigo, see your primary physician as well as an ophthalmologist and ENT, respectively.
Note regarding relapsing polychondritis but the specialist that I saw for this said that with that condition, there will be gradual deformity of the ear; generally the ear enlarged and the top of the ear will droop. I do not have the physical characteristics.
Are there any men in this group? I have all of that. It is NOT Relapsing Polychondritis!