← Return to Essential Thrombocythemia: Looking for information and support

Discussion

Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
Comment receiving replies
@ttown

The good news....after being off the HU for 5 days and getting my mouth healed, my oncologist put me back on HU 4 days a week. I take it on Saturday, Sunday, Tuesday, and Thursday. Have been back on for a couple of months now and no more sores and my platelets are down in the mid 500s. I feel good and as long as this keeps my platelets down, I am good with taking the HU.

Jump to this post

Replies to "The good news....after being off the HU for 5 days and getting my mouth healed, my..."
eileen11108 | @eileen11108 | Feb 1, 2023

Hi ttown,

I also want to suggest you rinse your lips and swirl water around your mouth before taking HU. Then take HU with full glass of water. This way your mouth is coated before taking. It is working for me.

Eileen

VIEW AND REPLY