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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)Comment receiving replies
Hi there
New here. I was diagnosed in dec with ILC 2.1 cm. Had lumpectomy and sentinal node removal last week and found out 1 node had "rare isolated tomor cells". My margins weren't clear so I have to go in for re-excision. I am feeling very anxious about lumpectomy decision bc possibly mastectomy could be done. But Ive been advised that outcomes were same for both options and conserving breats more ideal for me? I am small chested and feel like if it doesnt help outcome why go thru all surgeries/spacers and implants? The plan is radiation starting about 4 weeks after final re excision and unsure about chemo, then the hormone blocking meds for post menopausal. You seem to be in similar situation and to everyone reading does this seem on par with your plans if similar? Were you recommended same plan? Any input so welcome. This all is just brutal. Oh and FYI I had been on HRT for 5 years bc menopause was so rough (i am 55) and MD said I was a good candidate bc no history of breast cancer.
Replies to "Hi there New here. I was diagnosed in dec with ILC 2.1 cm. Had lumpectomy and..."
@lhwoz, what did you decide as next steps? How are you doing?
Hello there. I am new to this forum. I have ILC and had a lumpectomy and sentinal lobe removal and two of the three were cancerous. In addition, the path report had little dots at the margin. I went in for a re-excision. That path report took a long time to come back, and still showed dots at the margins. I am wondering if your last path was clear, and if you went on to radiation? My doctor thinks mastectomy would be safest (and easier for her so she doesn't have to worry about the difficulty imaging these hard to see dots) but trying to get second opinion. I would really rather not have mastectomy. My anxiety is through the roof, and I am very bereft. Thank you for listening, my best wishes to all.
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Hi - Hang in there and so understand where your "are" - I finished my 19 radiation treatments last week and my onco likes to wait two weeks post radiation to start anti hormone meds. I'm 57 and will start on letrozole which I've very anxious about but taking one day at a time. I think your plan for re-excision sounds very similar to what my plan would have been had my margins not been clear. Once you get your oncotype results you will have a better roadmap in terms regarding if chemo would be part of the plan. I also was anxious about lumpectomy vs mastectomy but I am now very comfortable with lumpectomy decision as the science really does say in our cases the mastectomy doesn't impact the rate of re-occurrence. Don't look back on HRT treatment as who knows whether that had any impact. Keep us posted and hang in there!!