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Extreme outer ear pain: What can it be?

Ear, Nose & Throat (ENT) | Last Active: Aug 8, 2023 | Replies (402)

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@marlaj

I have had this same problem for many years. It is not relapsing polychondritis. It is not an autoimmune inner ear disease. The pain is triggered when I lie down on my side, with my ear touching a very soft pillow. Pillow softness does not prevent the outer ear cartilage pain. I know many people who can lie with their head against a pillow and sleep without pain. I used to be one of them. Many of us 'oddballs', exist and suffer from this"mystery diagnosis". I keep waiting for our superhero to appear and remove this pain forever.

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Replies to "I have had this same problem for many years. It is not relapsing polychondritis. It is..."

I have this same thing. No diagnosis. Have been researching this for almost two years. Had every test known to man. Even had an ear biopsy. I believe mine may be autoimmune related, as I have other symptoms, as well. Ear biopsy showed inflammation in ear tissue. I do take Meloxicam and this helps to minimalize all symptoms.