Welcome @dbont, I'm tagging fellow members living with smoldering multiple myeloma like @beepoop @1nan @pro @lkzvlk @lfevold @gingerw and @cctoo into this discussion. You may also be interested in this discussion:
- Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait https://connect.mayoclinic.org/discussion/newly-diagnosed-with-smoldering-multiple-myeloma/

You may also be interested in this video with Mayo Clinic hematologist Dr. Kumar
– Multiple Myeloma: Smoldering, disease progression, and changes in approach: https://connect.mayoclinic.org/page/hematology/newsfeed-post/smoldering-myeloma/

For some people watch and wait can be disconcerting. I prefer to call it active surveillance. How do you feel about active surveillance as your primary treatment option?

Welcome!
I was diagnosed with SMM in Sept. 2020. I do blood work every three months and CT Full scan annually. I did add Curcumin 400x to supplements but please discuss with your Hematologist. I am in central Iowa and my Hematologist is at Mayo- Rochester. Look into Health Tree for Multiple Myeloma. https://healthtree.org/myeloma They have excellent free webinars that are very educational.
Linda

@dbont Let me add my welcome to Mayo Clinic Connect!

Watching and waiting in any situation can feel like you are not doing anything worthwhile, doesn't it? I totally understand that. Here, pull up to the table and have a cuppa tea with a couple of cookies. Having a diagnosis of smoldering myeloma is just as @colleenyoung suggested, active surveillance. There is nothing to be done while the numbers stay within certain parameters. Go on with your life as normal, and try not to look for things that might go wrong. Many of us place the situation on a back burner, accepting it as a matter of life.

How are you doing with all this? And how is your husband doing? Be sure to check with the social worker at his medical office for additional local resources if you feel the need.
Ginger

One more welcome here @dbont . Colleen kindly invited me to meet you and share my thoughts with you. I was diagnosed with MGUS in 2002 and smoldering myeloma in 2004. I have aspects of that journey in my profile, but know that I was in care of a specialist at Mayo Clinic in MN and monitored every 3 months by my local oncologist until 2016 when treatment was first indicated. I was one of those "back burner" patients Ginger mentioned who continued to live life without concern until it was time get to work. I was not about to be held hostage by fear, especially fear of something that might never happen. Fast forward to February 2023. I am 81 years old, coming out of remission and again watching and waiting. And the back burner has been used again. We all will suggest that you arm yourself with information, stay close with your faith based sources if appropriate, have a support system, and be your own best advocate. I will also suggest that you make Connect a reliable source of information, encouragement, and strength. Please consider help that has come since your initial contact, and let us know if we are meeting your needs and what else we may do for you.
Peace, Nancy